This is what happens when you need to change your omnipod, which means no insulin delivery, because you get distracted by this…
As I plan itineraries and sight seeing for our trip to Florida in a few months I can’t help but think about how stressful it could end up being because despite my pleading and begging diabetes has decided to tag along for my first family vacation.
I asked nicely.
I’ve even been babying it in hopes that it might let me slide this one time but my hopes were shattered when diabetes decided that I couldn’t escape it’s grimy, disgusting grip on my life.
So included in my planning for all the exciting events I have to also plan for diabetes. I have to make sure I bring with me enough supplies and game plan for anything that may go wrong.
Here’s a quick list of things I will need:
- At least three pods, not including one that I’ll be wearing. (I’ll be away from home for a total of four days) Pods can be fickle little beasts sometimes.
- Test strips and my meter.
- Triple A batteries for my PDM which controls the whole pump/insulin system. With out that I couldn’t bolus.
- An extra Dexcom just in case mine craps out.
- Syringes. Because pods could die and then what would I do.
- Charger for my Dexcom.
- Water and snacks for low blood sugars.
- Locating pharmacies in case of extreme emergency.
Truthfully I have to have back up plans for my back up plans. You never know what could happen. Because the thing about diabetes is that if you don’t have an idea of what to do in an emergency, or if you miss even the tiniest detail in planning, you could be screwed. Just in case is something I mumble a lot to myself even when I’m not going on vacation. Just walking out the door to the grocery store gets a plan A,B and C. “Well, I should bring this/do this just in case…” I can’t leave things up to chance. I can’t afford to blow caution to the wind because my life literally depends on it. That;s a scary thought, am I right?
It’s frustrating but manageable. It’s annoying and tedious but I can do it. I just wish I didn’t have to. I wish I could go on our vacation with little to worry about.
I plan on having a magnificent time despite certain hassles, I plan on enjoying myself fully. Because not even diabetes will ruin my vacation! I just have to be sure to plan accordingly.
Have you been on long vacations with diabetes tagging along?How did you manage and what are your tips for traveling?
Please excuse my very grouchy language in the title but it’s the truth. I’m not writing this to be negative, just honest. At the end of a very long and stressful day or even a fantastic one… diabetes will always suck.
I have had many days where my blood sugars are stable and I am a bolus queen. But most days aren’t like that. Most days I encounter high numbers here and there or numbers so low I can’t think. What makes it even more annoying is that these highs/lows always seem to happen at the most inconvenient of times.
When both kids are cranky or I need to feed my son because he’s screaming his head off. I can’t give either one of them my full attention because I’m about to pass out from a blood sugar reading of 45 or lower. I can’t function. I can’t even remember my name but I have to suck it up and fix the situation. It’s stressful.
Or how about when I’m trying to drive to work, or a doctors appointment, but then I have to pull over to fix a low blood sugar or else I could be putting myself and others in danger. I’ve had to sit in the car for almost 20 minutes waiting for my numbers to stabilize. It’s frustrating.
Sometimes my blood sugar gets high and I have to stop playing with my daughter, or stop making dinner, so I can give myself insulin or I could again be putting myself or others in a possibly dangerous situation.
A few days ago my pump decided to crash out on me in the middle of my shift at work. My numbers were so high I felt sick. My head was pounding, my mouth was dry, and every time I took a step I felt dizzy, I couldn’t see straight. No matter what I did I kept creeping higher and higher until eventually I had to leave early. It was upsetting to me because I try very hard not to let diabetes get the best of me or interrupt my daily routines but sometimes it does and I just have to deal with it.
These might seem like no big deal to some people but when you are trying all that you can to take care of yourself and you still end up feeling helpless in certain situations, because your body is fighting against you, it can be overwhelming.
The reality is that with diabetes there’s no time off, no vacation away, no 20 seconds of freedom. Diabetes is 24/7 and it just sucks.
I try to stay positive with everything because these were the cards I was dealt but it’s become very difficult with the new baby to care for diabetes like I used to. Diabetes is needy and uncaring. I’m hoping to get back into a rhythm with it but so far it’s just been an overall mess.
It doesn’t help that no one can really tell when you’re struggling with this disease because you can’t see it. I may look fine on the outside but I’m battling a monster inside. That’s what this disease is no matter how you look at it. A monster. Every one handles their diabetes differently, I try not to make a big deal out of my struggles but sometimes it is a big deal.
I’m in a bit of a diabetes funk if you couldn’t tell but I know tomorrow is a new day and it will be better. It just has to be.
I’m still smiling and I hope you are, too.