I am very excited that it is finally here..
Today starts the fourth annual Diabetes Blog Week.
You can find out more information here at Bitter Sweet Diabetes. Follow the link to get information on signups, and prompts, as well as a link to read all the posts for that days particular prompt. It’s a chance to share and get acquainted with other bloggers we might not otherwise get the chance of running across and hear what they have to say about the topics at hand.
So, here we go..
Day One Prompt: Often our health care team only sees us for about 15 minutes several times a year, and they might not have a sense of what our lives are really like. Today, let’s pretend our medical team is reading our blogs. What do you wish they could see about your and/or your loved one’s daily life with diabetes? On the other hand, what do you hope they don’t see?
Well, I suppose I should start off by saying that I don’t actually have a stable healthcare team. Though, I do have a family doctor who has been more than efficient at taking care of my diabetic needs. The issue that I have run into quite frequently is that most of the doctors I have sought out over the years have ended up not being diabetic specialists or they were so much out of our price range at the time. The truth is that to be able to get the proper health care I need we would have to dish out funds we just cant come up with sometimes. After years of doing this on our own my husband and I have been on the hunt for someone we could actually afford, unfortunately, we have come up empty handed. So in the meantime I have been bouncing around from specialist to specialist trying to find, not only someone our insurance will cover, but someone who is going to listen and understand what is going on with my body.
It’s a very frustrating process.
So this post goes out to my future diabetic specialist as well as my current family doctor: The biggest thing I would like them to see/know is that my daily life is more than just the numbers its how those numbers make me feel. Every one of us is different, 189 might be too high for one person but just right for another. Sometimes I sit at 170 and I feel great, I’m running around with my daughter, not having to stop for insulin or water. Yet still I get scolded for being higher than 120. I don’t always understand what they want from me and even when I ask sometimes I feel like we are all just going through the motions. Blood work, number check, dosage change, see you soon. No one stops to discuss the strain and stress I am feeling. So I am left thinking that I need to be doing this “perfectly” and some days I just can’t meet that expectation. Whether I am putting it on myself or not.
Also, I wish they wouldn’t pay so much attention to those “bad” days, though I understand why they do, and maybe praise the good ones a little more. I can honestly say that I do have way more good days but those get over looked. I try so very hard to manage or maintain or whatever you want to call it and still all anyone wants to focus on is that one day, out of fifty great ones, that I needed a little extra help. I need my doctor to be my support team, someone who will cheer me on during the great days and encourage me when I do get knocked down here or there. Because it does happen.
Could I be asking too much?
I read all the time about the amazing relationships some of you have with your doctors and I hope that I can find that too. So I guess for the most part, though, don’t get me wrong my family doctor has been amazing, I just wish they would see that I’m not perfect and neither is this disease. I wont give up, I wont stop fighting, and I only ask that they have the same mindset.
Lets beat the beetus together. :)